tag:blogger.com,1999:blog-6865733752789195615.post632828138417856302..comments2023-07-21T09:55:19.810-04:00Comments on Today's Reflection: Home againBeth Gorehttp://www.blogger.com/profile/09252202174505669346noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6865733752789195615.post-92116214302370103852010-07-05T20:46:14.641-04:002010-07-05T20:46:14.641-04:00I've been checking Manny's blog everyday s...I've been checking Manny's blog everyday since the day we met in the hospital(not to mention one of the most amazing experiences I have had throughout this journey called life) I am so happy to hear that they were not seizures. Seeing the pictures of him and his Daddy hit that place in my heart that make me smile and tear up at the same time :) This is extraordinarily special and my thoughts and prayers are with you, Manny, and your family everyday. Give Manny a "five" for me! Stay Strong... as I know you will.Whitneynoreply@blogger.comtag:blogger.com,1999:blog-6865733752789195615.post-55162911067705355262010-07-03T11:15:47.661-04:002010-07-03T11:15:47.661-04:00What type of EEG did they do? There are many types...What type of EEG did they do? There are many types and if they are deep in the brain, an EEG doesn't always pick them up. What specifically does he do when he has these episodes?<br /><br />Elaine Forrester<br />mother to a teenager with autism, epilepsy, and MRElaine Forresterhttps://www.blogger.com/profile/13085881727676326776noreply@blogger.comtag:blogger.com,1999:blog-6865733752789195615.post-85477177827921597922010-07-02T14:58:24.175-04:002010-07-02T14:58:24.175-04:00Beth, does he still have his fundoplication? Do t...Beth, does he still have his fundoplication? Do they know if he has a motility problem (stomach not emptying quickly enough). Abby has a severe motility issue, and gagged and vomited frequently when her stomach could not empty properly. If she had a fundoplication, that would have prevented her from vomiting and I am assuming she would have just gagged endlessly and nothing could have come up. That's one thought I had when seeing his video of the mild episode. So glad it's not seizures!Angela Weissnoreply@blogger.comtag:blogger.com,1999:blog-6865733752789195615.post-52605981139952944662010-07-02T14:57:15.494-04:002010-07-02T14:57:15.494-04:00Oh and I love the kiss that he gave to daddy (pic)...Oh and I love the kiss that he gave to daddy (pic). You can tell he is glad to be home.Marjoriehttps://www.blogger.com/profile/02790098327050865890noreply@blogger.comtag:blogger.com,1999:blog-6865733752789195615.post-63360043407879723312010-07-02T14:56:34.795-04:002010-07-02T14:56:34.795-04:00Have you tried rolling him on his side when he sta...Have you tried rolling him on his side when he starts the episodes? I'm sure you have...I'm just curious if it changes anything for him? How about massaging the sides of his neck during the episode? Does that do anything? I hope you get answers soon. It makes me laugh a little that so many medical professionals said the episodes were seizures and a group of moms who have seen seizures in their children said they weren't...and the moms were right. lol It makes me wonder that they all said "seizures" because they are looking for seizures. They think that seizures are "next" on Manny's timeline so anything odd that pops up "must be" seizures.Marjoriehttps://www.blogger.com/profile/02790098327050865890noreply@blogger.comtag:blogger.com,1999:blog-6865733752789195615.post-36584115615264561662010-07-02T14:48:23.238-04:002010-07-02T14:48:23.238-04:00So happy that the hospital visit was a pretty good...So happy that the hospital visit was a pretty good one! He is absolutely one of the most beautiful children I have ever seen Beth! We will keep praying for some clarity with the testing. Blessings! KelliEnvyshopehttps://www.blogger.com/profile/05145918060785765654noreply@blogger.com