|9 months old, the day he came to live with us|
Even Medical professionals. They view him from the perspective of "deficits". Can't walk, can't crawl, can't .....
I'm always tempted to say, "But you should see how far he's come!" But all they can see is how far he has to go.
This view frustrates me to no end.
For example, today he got shots on his legs. A few minutes later, he pointed to his bandaid and said, "On". "Doctor on." Uh ... dumbfounded, I was like, "Yes! The doctor put this bandaid on." OK so I know it's not like we're discussing Shakespeare here ... but he IS only 17 months. He never heard English until 8 months ago. He was written off as basically brain dead. And now he is putting together a 2 word sentence that I'm sure he's never heard before.
I am impressed.
In fact, that's the word the Neurologist used today about Manny. "Impressive." See, THIS is the doctor who delivered the news of "Leukodystrophy, end stage". This is the doc who wasn't sure he was "there". This is the doc who has removed the diagnosis. He calls him, "My baby". He shakes his head in disbelief of the progress. Today I showed him that Manny can sit unassisted. He just about lost it!
This doc sees Manny through the lens of how far Manny has come.
And I guess I should offer a third view ... how far will Manny go? We dare hope for the entire miracle.