|GAP stands for "God Answers Prayers"|
But apparently, God works in mysterious ways. He began to heal Manny. We have no clue if his actual BRAIN was improving. But we know that Manny was improving. He started to move more than just his eyes. He started moving his head, fingers, hands, toes, wrists, arms, legs, etc. Little by little, his body was "waking up", from the outside in.
He learned to hold his head up. He sat up unassisted. He started talking. 2-3 word sentences even! Cognitively, he showed he is "all there". He is truly present behind those beautiful eyes.
Every doctor was shocked. Speechless. I would tell them we believe in a big God who is still doing miracles today. They often agreed.
It was decided (by that original neurologist) that we should do a repeat MRI. So we did. As I type this, I don't have the answers yet. But I will continue this post tomorrow and tell the rest of the story.
Today I picked up the MRI and Preliminary Report. The final one is supposed to include a comparison from the first to the second and I had HOPED this would include it too. But quick story ... the MRI findings are still consistent with a Leukodystrophy, end stage. So now that means what? They're going to still have to do some more digging to find out the type, etc. But it also means that God is going to get glory that even though his MRI shows he should be regressing, he is progressing.
So while it's not the news we had hoped for, we are in faith this story is far from over.
IN OTHER NEWS:
Today was a big day for other reasons as well.
1) He got new foot braces. I'll do a blog soon to show the 3 types of casts/braces he has or had. He is not a fan and they are leaving bad marks so we have to get them adjusted. But this is a "step" in the right direction for being able to walk some day.
Happy weekend everyone!