As you know, last Wednesday (week ago today) Manny got the jtube. All feeds go through there and so do meds. Gtube is just to vent (suck stuff out ... up unitl yesterday it was only mucus and stomach acids). Yesterday I vented formula ... LOTS of it. Basically all we had put in. So he was going to get dehydrated. Called the GI and he said to switch to pedialyte and come in today. I did.
Got here about 10am and went to GI office and all the docs were at an off-site clinic so they sent us to the ER to get fluids started so we wouldn't have to wait so long and he wouldn't get dehydrated.
10am-12noon waited to go back to the ER room. I told them I was here because his jtube has become dislodged and he is dehydrated.
|on the way to xray in a little red wagon|
They eventually ran the test and it proved I was right ... dislodged. 3pm or so we got that news. Meanwhile, I cannot wake Manny up. He's never a napper. He never sleeps in the day and I can't wake him up. I point this out to the Docs and nurses and they are not concerned.
They are also not concerned that he hasn't peed in 25 hours by this time. I pray and try to wait patiently.
By 5pm the come in and say they are starting fluids. Well FINALLY! They thankfully got it on the first try but couldn't get blood (too dehydrated). So they stick him on the foot ... nothing. They give him 1 1/2 hours of fluids and he starts to perk up just a bit. Then they stick his foot and milk out 3 viles and 1 bullet. He never even whimpers. NOTHING. It was quite strange and eerie. I keep trying to explain that this isn't normally him.
|on the xray table, always makes me think of a barbeque spit|
A little while later, they come in and say that none of the blood worked, that it all coagulated. And the lab person came to do it herself. This time a finger stick. While she is finishing up, a second person comes in and says that one of the labs from his earlier blood was at a critical level and they needed to retest.
His blood sugar was 45. (And that was taken 1 1/2 hours after getting fluids with dextrose in it).
Then they noticed he was breathing weird (something I'd pointed out before). Very fast and shallow.
Then up to the room. FINALLY people are starting to take notice. His other labs are back and they are showing very scary numbers. His Co2 Level is 14 (dangerously low). And his white blood count is 34,000 (last week it was under 10,000). So now we have everyone's attention. He is considered in critical condition at this moment. Oh, and as I typed that last sentence, he is starting to desat.
The Doc just came in and said his chest xray is showing something ... likely a pneumonia but not looking typical. So they'll do antibiotics.
Now they are going to have to stabalize him again before they can fix the jtube problem. I cannot believe we are in this situation AGAIN. We haven't been home a week! I don't know the plan for that.
And as I look over at my precious baby, he is looking pretty darned sick. He crashed FAST today.
Finally, we're in a double room ... so far no other kid in the room. Praying it stays that way. I HATE double rooms! The only good news is that if he does indeed have pneumonia they can't put another kid in here. Oh, and since he has been in the hospital less than 30 days ago, they have to do a MRSA test and they can't put another kid in here until that comes back clear. So for now, we're safe. I know it's a small thing ... but it means a lot to me to not have to share while he is so critically ill.
Oh ... wow that was fast ... by the time I finished typing that paragraph, God has already moved. This room isn't set up for respiratory (ie not support for him if he crashes) so they are moving us to a private room! LOL Thank you Lord.
Going to go ahead and publish this now since people are wondering what is going on. I'll start the running blog to continue after this.
Thanks for all the support and prayers. Please share this to as many prayer warriors as you know! You have our permission to share this around as he needs all the prayers he can get.
Love you all! Thankful to have you along on this journey.