May 15, 2010

Cherished moments ... dancing

I've been sharing a lot about Manny's physical condition.  The drama.  The tests. 

But I haven't shared much about how he is doing.  Here's a picture of me being silly and him looking at me on Mother's day (before the hospital). 

Manny is one of the sweetest, kindest, most gentle souls you'll ever meet.  We had to close our windows on our room to the hallway.  Why?  Because people would stop by his window and gawk... just because he is so cute.  How do I know that?  Because they forget the windows aren't sound proof and they stand there talking about how cute he is. 

When someone walks into the room, he immediately starts crying though.  Why?  Because most of them are coming in to probe him in some type of way.  And he has the most pitiful cry ever.  People feel horrible for having made him cry. 

A Child Life person came and brought him the coolest mobile for over his bed.  Along with a musical toy.  It's motion activated so all he has to do is move his hand near it and it comes on.  (And he can do that.)  Right now, he's "talking" to it.  But just a few minutes ago, I was dancing around the room to the music.  Doing Ballet type moves and fluttering around.  He LOVES that.  He is so appreciative that I find myself doing it way longer than I would like to, just to see his eyes light up and his precious smile. 

As I dance, I pray.  I wonder if he's ever going to be able to dance.  And so I dance FOR him.  I put my heart and soul into it.  Because I KNOW that if he could dance, that is the way he would do it.  All in.  All heart and mucho gusto!   And periodically I'm allowed to pick him up.  And he's so very weak as they're only giving him fluids ... nothing to eat.  So I dance gently with him.  He's so very thankful for the movement.  He thanks me with his eyes. 

What could be better?


  1. Breaks my heart, fills my heart and my eyes. Wonderful, precious memories to store in your heart. Thanks for sharing Manny with us.

  2. Stupid blurry screen....

    Much love to you both...