May 19, 2010
EEG and a visitor
Today we had a visitor. Tara is a fellow adoptive mom and we've chatted on line and on the phone but never in person. Yesterday she asked if she could visit an I welcomed it. So great to talk to a fellow mom who "gets it".
She asked if I needed anything and I can't believe I did it but I asked her for a razor and some soap that didn't make me smell like the hospital. (Trust me, I'm a LOW maintenance kind of gal so if I asked for something like this .. it was BAD! LOL) She not only brought me that, she brought me all this. There was so much stuff I couldn't get it all in the picture. As I type this, I'm waiting for Manny to drift to sleep so I can use it!
We are doing the EEG to see if he is having seizures. We need a baseline. If he's not having seizures yet, that's a great sign! If so, it's a bad one of how far the disease has spread. We're praying for a good report!
As I laid there beside him and he drifted off to sleep, Tara was there and so was our awesome nurse Dana (more about her in another post). He was having the hardest time sucking his pacifier. He wanted to for comfort but he was not able to due to tongue miscordination. And it just hit me. Tears started to flow. Not the wailing kind of crying but the kind where the water starts flowing and can't stop. At one point I looked over at Dana and Tara and I think I saw tears. I think you'd have to be pretty heartless not to feel something for this little boy. Everyone who meets him falls instantly in love.
Isn't he stylin' in his turbin??